Nafisatul Wakhidah, Yulia Solichatun firstname.lastname@example.org
This study aims to describe the psychological well-being of the caregiver for patients with terminal illness. Caregivers for terminal illness, have been hampered by problems of development tasks that affects their psychological well-being. Terminal illness itself is nothing but a category of chronic or acute diseases that are not only subjected to various physical problems such as pain, shortness of breath, weight loss, interruption of activity but also the psychosocial and spiritual disorders that affect the quality of life of patients and their families. Using qualitative case study approach, the researchers collected data through observation, interviews, field notes and documentation. Informants for the study were women caregivers aged 25 to 65 years old, married and still care for dependents children. This study used thematic analysis. The results revealed that the three informants show a desire to cure their terminally ill family members, yet at the same time they have not accepted the illness of their family members or the additional duties attached to them. They also have to fully adapt to the environment, manage their daily activities, keep good relations with others even though its intensity was not as much as when they have not become a caregiver. The three informants could determine independently a few things associated with them, such as the need for emergency care for the patients, but on the other hand they also requested consideration of the family, especially matters related to family finances. In general psychological well-being of the caregivers is influenced by age, life experience, education level, economic status, social support, and culture.
Keywords; Psychological well being, caregiver, terminal illness.